A person with MS should try to maintain their own current contact list of care providers to call with an emergency, a relapse, or a problem or question about medications. Click here to open a form where you can enter your information, and print it or save it to your phone or computer.
Due to the diverse effects of MS, people may see a variety of different care providers. The goal of the MS Care Pathway is coordinated MS Care. Your family doctor, an MS nurse educator and a neurologist should play a role in navigating you to the care you need. Ideally, most information about you and your health status should be collected and shared by this care team.
A neurologist is a doctor who specializes in conditions affecting the brain and nervous system. General neurologists support people with a range of conditions like MS, Parkinson’s disease, stroke, epilepsy, dementia and brain injury.
A person with MS should have a regular neurologist, and should be seen for a comprehensive visit annually. The neurologist is also the person to call for suspected relapses or troubling neurological symptoms. The neurologist orders brain imaging and tracks the progress of the disease by reviewing MRI scans and keeping track of clinical symptoms. If appropriate, the neurologist will discuss MS treatments and help select a treatment. In Saskatchewan, neurologists are only located in tertiary centres (Regina and Saskatoon). MS specialist neurologists are only located at the Saskatoon MS Clinic.
MS can only be diagnosed by a neurologist, so anyone with an MS diagnosis has seen a neurologist at least once. If for any reason you would like to see a different neurologist than the one who diagnosed you, speak to your family doctor to get a referral.
The MS Nurse Educator is located at the MS Clinic in Saskatoon but is available by phone to all residents of Saskatchewan for MS general information and advice about MS drugs.
A person with MS can self-refer to the nurse educator – no physician referral is required. Physicians may also make a referral if they want a patient with MS to have a meeting or discussion with the nurse educator for help selecting a treatment plan, regimes. Drug therapies for MS can have complicated requirements and the nurse educator assists the patient and family to consider the requirements, risks and benefits of various treatments.
The nurse educator also helps patients to navigate the MS Drugs Program, including providing education about eligibility, criteria for coverage of various therapies, and information on how to obtain funding assistance for MS therapies.
The services of the nurse educator also extend to basic educational services for MS patients and help to navigate a person with MS to the appropriate service. The nurse navigator provides counseling and services to patients and families when there may be no appropriate pharmaceutical treatments available.
To contact the MS Nurse Educator phone 306-655-8673/ Fax 306-655-8404, or call the MS Drugs Program toll free at 1-866-655-7966 and ask to be connected to Shirley. Email: email@example.com
Multiple Sclerosis Society of Canada’s MS Knowledge Network is a service of knowledgeable navigators, available to talk to MS patients and families and provide consistent, quality MS information and support for anyone in Canada.
MS Navigators are not medical professionals, but they have access to vast stores of information collected by the MS Society about every aspect of MS. They can provide trusted information on MS to help you manage your own care, and help you find information and support that is tailored to your unique needs. Navigators can also connect people to the local MS Society staff for assistance with local programs and services.
Contact an MS Navigator to learn more about: :
To contact the knowledge network phone 1-844-859-6789, e-mail firstname.lastname@example.org or web chat with navigators from 8am-8pm ET at mssociety.ca.
The Saskatoon MS Clinic houses the province’s clinical leadership in MS care and research, including the Saskatchewan MS Research Chair and the MS Drugs program. The clinic sees patients with suspected MS or confirmed MS, as well as patients with rare diseases of the central nervous system.
To attend the MS Clinic for the first time, patients require a physician’s referral. After the first visit, patients can contact the MS Clinic directly. The MS Clinic is a full service clinic that provides clinical assessment by a specialized neurologist and access to diagnostic imaging. In-house neurologists prescribe MS treatment and other medications, and monitor health status and disease progress. Patients may see other in-house providers for symptom management during their clinic visit, or the clinic will set up referrals to other providers.
Any MS patient can attend the Saskatoon MS Clinic for ongoing care, but many people with MS continue to see their local neurologist and MS nurse educator for day to day management and referrals, with access to the Saskatoon MS Clinic for specialized assessment and services.