Advancing Respectful Indigenous Data Governance and Measurement
Reliable and respectful data practices are fundamental to improving health outcomes and fostering trust.
The Saskatchewan Health Authority (SHA) is committed to:
- working in partnership with Indigenous leaders and communities to develop data governance processes that reflect Indigenous priorities, respect Indigenous data sovereignty, and support shared decision-making.
Why Indigenous Data Governance Matters
Respecting Indigenous data governance principles is essential to delivering safe, equitable, and high-quality care. When data practices align with Indigenous rights and perspectives, they strengthen relationships, support trust, and enable more accurate and meaningful understanding of health needs and outcomes.
By working in partnership and working alongside Indigenous leaders in data governance, SHA can better identify gaps, improve services, and ensure that decisions are informed by those who own the data, Indigenous communities themselves. This approach contributes to reconciliation and supports more responsive and effective health system planning and delivery.
From Knowledge to Practice
Turning Our Commitment into Action
Resource | Author | Description | Time |
|---|---|---|---|
| First Nations Principles of OCAP | First Nations Information Governance Centre | Online learning modules: The First Nations principles of ownership, control, access, and possession – (OCAP®) assert that First Nations have control over data collection processes, and that they own and control how this information can be used. | 6 hours (*cost) |
| The First Nations Principles of OCAP - Brochure | First Nations Information Governance Centre | Brochure highlighting fundamental information about OCAP. | 5 min read |
| Respecting First Nations, Inuit and Metis Data Sovereignty | Canadian Institutes for Health Information (CIHI) | Introduction to the fundamental principles of FNIM data sovereignty and governance rights, equipping you with the knowledge to engage with FNIM data respectfully and transparently — building trust and fostering meaningful relationships with First Nations, Inuit and Métis communities. | 40 min online course (*free) Includes certificate of completion
|
| CIHI Approach to Advance Cultural Safety | Canadian Institutes for Health Information (CIHI) | Learn about CIHI's own learning journey on advancing Cultural Safety and Humility. Includes 4 focus areas for Indigenous Health. | At your own pace - webpage |
| Measuring Cultural Safety in Health Systems | Canadian Institutes for Health Information (CIHI) | Introduces a framework for and identifies examples of measuring cultural safety and anti-Indigenous racism in health systems. | 20 min read |
| Early Findings on the Measurement of Interventions to Advance Cultural Safety | Canadian Institutes for Health Information (CIHI) | Summary of pilot testing of the CIHI Organizational Interventions Measurement Tool to Advance Cultural Safety. | 30 min read |
| Indigenous Peoples' Rights in Data | Global Indigenous Data Alliance (GIDA) | GIDA has developed a set of rights for Indigenous Peoples’ rights in data. One page overview | 3 min read |
| Indigenous Knowledge: Connecting Data, Land and Story | Ava Walderman, Saundra Branova ASM (USA) | Explore how Indigenous innovations in health and medicine predate or inform "modern medicine" | 8 min read |
| Indigenous Data Sovereignty and Governance | Global Indigenous Data Alliance (GIDA) | PowerPoint that provides key understanding of Indigenous data governance. | 40 min read |
| Indigenous Data Sovereignty - Learning Module | British Columbia Network Environment for Indigenous Health Research (BC NEIHR) | This module provides an overview, timeline, key points and resources related to Indigenous Data Sovereignty. | 20 min video |
Resource | Author | Description | Time |
|---|---|---|---|
| A Guide for First Nations Communities on Using Health Data with CIHI | Canadian Institutes for Health Information (CIHI) | Guide to assist First Nations communities in accessing and using CIHI-supported health data to support their community’s health priorities. Helpful for health care delivery planners, practitioners and managers. | 40 min read |
| Indigenous Patient-Centred Measurement | British Columbia Patient-Centred Measurement (BCPCM), Indigenous Advisory Committee | Explore how Indigenous knowledge, experiences and ways of knowing can inform and decolonize current Patient-Centred-Measurement processes (i.e., survey tool selection and development, data collection processes, analysis, reporting and dissemination and on Indigenous ways of knowing). | At your own pace - website |
| Indigenous Data Governance Handbooks | Indigenous Primary Health Care Council (Ontario) | Three resources that offer a comprehensive understanding of Indigenous data governance aligning commitments to reconciliation in responsible data management for the betterment of Indigenous data sovereignty. | 2 hours |
| Circumpolar Inuit Protocols for Equitable and Ethical Engagement | Inuit Circumpolar Council | Protocol 7 (page 27) addresses Information and Data Sharing, Ownership and Permissions | 45 min |
| National Metis Health Data Strategy and Principles | Celsea Gabel, McMaster University and Robert Henry, University of Saskatchewan for Metis National Council | Provides guiding principles for Métis-specific health research and data governance (see pg 22) | 45 min |
| Reimagining First Nations, Metis and Inuit Data Collaboration | Health Data Research Network of Canada | Panel discussion explores First Nations, Métis and Inuit data and partnerships that bring together Indigenous organizations, communities and settler institutions, grounded in broader themes of ethics, respect and trust. Includes real-world examples. | 54 min webinar |
Resource | Author | Description | Time |
|---|---|---|---|
| Foundational Obligations to Indigenous Peoples Self-Assessment and Training Series Toolkit | U&U Lab (Unlearning and Undoing White Supremacy and Indigenous Specific Racism in Population and Public Health) | This series is about setting a baseline including specific instructions relevant to professional roles within the Foundational Obligations to Indigenous Peoples | 30 min (2 webinars) |
| Measurement and Monitoring of Cultural Safety Interventions | Canadian Institutes for Health Information (CIHI) | Information Sheet describing the project underway to measure anti-Indigenous racism. | 5 min read |
| Measuring Indigenous-Specific Racism in Health Care: A Journey Toward the Selection of a National Set of Cultural Safety and Indigenous-Specific Racism Indicators | Prepared by the Canadian Institute for Health Information (CIHI) on behalf of the Cultural Safety Measurement Collaborative (CSMC) | Distinctions-based national set of Cultural Safety and Indigenous-Specific Racism indicators. | 60 min read |
| List of Cultural Safety and Indigenous Specific Racism Measurement Baskets and Associated Indicators | Canadian Institutes for Health Information (CIHI) | Cultural safety and Indigenous-specific racism basket names and descriptions, and key indicators. | 15 min read |