Share Your Voice: Canadian patients perspectives on data sharing survey

Opportunity details

Position type

Participant

Number of positions available

2000

Organization

The University Of Ottawa Heart Institute (UOHI)

Role overview

We are inviting you to take part in a Canada-wide bilingual online survey about how health data should be shared for research. We will examine perceptions of risks and benefits, patients’ willingness to share data, and which types of data, and in what circumstance, people are most willing to share.

Required knowledge, experience, skills

If you are 18 years or older and have interacted with the Canadian health care system, for example, by visiting a doctor, hospital, clinic, or participating in a health study, we would greatly value your perspective. Participation is voluntary.

Time commitment

15 minutes

Location

Virtual

Web address

https://survey.ottawaheart.ca/index.php?r=survey/index&sid=679293&lang=en

What can you expect from the research team?

After completing the survey and you can enter in a chance to win one of three $100 gift cards. Survey results will be analyzed and having specific data from Canada on patient preferences for how data is shared, what data is shared, and to whom, will be critical to implementing data sharing policies and practices in a way that best serves the Canadian community.

Supports available to participate

After completing the survey participants can enter in a chance to win one of three $100 gift cards.

Submission of interest deadline

June 14, 2026